Some much needed happiness
For a family facing a heart breaking future, Special Days have provided wonderful memories of happy and carefree times.
Tracey and Mick talked to us about what Special Days have meant to their family…
"All three of our children were diagnosed with the same condition, spinal cerebellar ataxia. Our eldest daughter, Kayleigh, died at just 20 years old after battling the debilitating condition. At the time she was ill, we didn’t know about Willow. As our middle daughter Sarah’s condition worsened, my husband learned of Willow. It was wonderful to hear that there were people who were there to help with the positive things, not just to deal with Sarah’s medical needs. At the time, Sarah was suffering with acute autonomic neuropathy, which means her nervous system was shutting down. Sarah was just 22, wheelchair bound, fed through a tube, had severe learning disabilities and required 24 hour care.
It gave us the chance to wind down
When we heard Sarah was eligible for a Special Day, we decided to do something that would help us forget the day-to-day stresses and provide us with the quality time we craved as a family. So we chose to go to Butlins. Because of Sarah’s illness and the difficulties with transporting equipment, medication, etc, a day trip just wouldn’t have been possible. The short stay at Butlins gave us all a chance to really wind down.